A way to stop leaking oil spill into the gulf of Mexico(July 6,2010 SunJa Hwang’s prophecy)




SunJa Hwang is a famous Korean woman predictor. She has lots of abilities. However you may not believe her abilities even if we tell you some. She has predicted about the changes of the earth, abnormal climatic change, earthquake, tsunami, swine flu, rare diseases, Middle East war, world economy, American politics, American economy, Korean politics, Korean economy and our future since 2006. July 6, 2010 she predicted the way to stop leaking oil spill into the gulf of Mexico. Here’s a video. Note her prophecy and check her name on internet.

Battens Disease



There are several types of diseases which are commonly seen in our surroundings, some of them are minor diseases whereas some others are considered to be very dreadful disease. Among these diseases, battens disease is one of a dreadful disease which can attack any one. The battens disease is a disease caused by the inherited disorder of the nervous system of a person which is visible from the childhood of the person. It is also known as the Neuronal Ceroid Lipofuscinoses (NCL). There are several types of NCL and the batten disease is the primary condition of the disease.

The symptoms of the battens disease is that it begins to appear in the childhood in the form of sort of eye problems in children. Because of this disease, the children face problems in seeing or this disease occurs in other form by making the child unfit for various intervals. There are some other cases found in which the signs of the disease are not completely shown. Thus the signs of this disease are not clearly seen. In some cases, it is found that this disease lead to the change in the personality or change in the behavior of the child thereby making the child completely disable. This disease can even lead to the death of the child.

The NCL is divided into four categories. The four categories of the batten disease are Infantile NCL, Late infantile NCL, Juvenile NCL and the fourth is the Adult NCL. The symptoms of all four main categories are same but they begin to show the symptoms in different ages and the progress rate of the batten disease or the NCL is also different in each category. It is a normal thinking that the batten disease is a rare disease but it can attack more than one person in the family. It is commonly seen in the northern European countries, Finland, Sweden and Canada.

The early symptoms of the battens disease are mostly not predictable by the doctors because each affected person have different symptoms for example Decline in cognitive function, abnormal body movements, Loss of communication skills etc. There are several tests suggested by the doctors to confirm that the person is affected by the batten disease or not for example the prenatal test, prenatal and pre-genetic embryo tests etc. now-a-days the scientists are trying their best to discover the medicines and treatment for the batten disease

If you are willing to have more information about the battens disease you have to surf the internet. There are several websites available through which you can easily have the information about the batten disease. The other option of having information about the disease is from your personal pediatrician or any well reputed pediatricians who can easily explain your doubts on the battens disease.

Treat Bell’s Palsy



Bell’s palsy is a condition where the nerves in the face become so inflamed that one side of a person’s face is paralyzed. The disease is most common in younger and older people. The paralysis usually happens suddenly and only lasts for a few weeks before going away on its own.

Symptoms for Bell’s palsy usually include noticing that one side of your face is droopy and you cannot close your eye. Other symptoms include drooling or excessive tearing of one eye. You could feel numbness in the side of your face that’s drooping, or you could even lose some of your ability to taste. You could have an increased sensitivity to sound, or even pain in or behind your ear.

Anti-inflammatory drugs are usually prescribed for this condition, because doctors aren’t exactly sure why it happens or what the cure is. It works for them to cure the symptoms for the duration of the disease, which is generally thought to be viral. In the United States, 1 in 6,800 people suffer from Bell’s palsy annually. This number makes the disease seem quite rare, which it is, but there are 40,000 cases in the U.S. every year. Some patients even get Bell’s palsy more than once.

One of the problems most patients complain of when they suffer from Bell’s palsy is the way they look. When one side of your face is paralyzed, it is clear to everyone who comes in contact with you. It’s frustrating for many patients who are trying to get their facial nerves to work when they simply won’t. Patients often feel embarrassed and alone, because there aren’t that many people who suffer from the disease. It’s normal to feel self-conscious and alone if you just got Bell’s palsy, but there are things you can do.

There are a number of support groups and forums on the internet where Bell’s palsy sufferers can come together and talk about their experience with the disease. Families of those suffering from Bell’s palsy can get involved too. There are topics up for discussion, such as how long the disease lasts for different patients, whether they’ve had it more than once or not, and how they are self-conscious and miss their smile.

The National Organization for Rare Disorders supports the research and development of rare diseases, such as Bell’s palsy. There are a number of other organizations that deal with conditions associated with nerve damage. The National Institute of Neurological Disorders and Stroke also support the research that is being done to understand the nervous system better and how it misfires and doesn’t work properly from time to time.

If you’re suffering from Bell’s palsy, it’s important to know you’re not alone. There are people out there who are feeling the same way as you. These people have tips and tricks on how to alleviate the pain you feel every day, and how to hide your symptoms and your self-consciousness.

IVIG California Campaign




IVIG is a life saving therapy and yet thousands of patients are being denied the critical infusions because of a flaw in the Medicare Act of 2005. This video kicks-off a national campaign beginning in California to ensure that the voices of patients with rare diseases who rely on IVIG are heard during health care reform because these patients are the ones that have been affected negatively in the past and will continue to be affected the most in the future. There voices must be heard. Please join us in ensuring that patients have access to lifesaving therapies by going to www.plasmaalliance.org

Life Works: Recreational Therapist.mov




Mary Carson discusses the importance of recreational therapy and her typical day.

Interview with Prof. Peter CHANG at European Commission – Rare Disease Day 2009




Interview with health advisor of Taiwan health ministry on EU Affairs at the European Commission at the launch of the book ‘The Voice of 12000 patients’ published by EURORDIS on March 2 2009 in conjunction with Rare Disease Day.

Effectiveness of Home Remedies For Toenail Fungus



Many diseases can be successfully treated in traditional procedure, traditional home remedies for toenail fungus infection is very famous and effective.

Fungal infection is very common in human, plant and animals. The example of fungus infection in plant is mushroom. Fungus attacks all the organ of the body both internally and externally. Some infections are very hard to treat especially when the interior organ affected by fungal infection. This infection easily spread through the contact with the affected person.

The superficial fungal infections are ring worm and athlete foot. Candida albicans is an organism generally affects the mouth, vagina and anal organs. The persons involving in gardening activities, farmers, and horticulturist are mostly affected by fungal infections because they often contact with the mud, sand and plants. The people involving too much of water activities also infected by fungus.

The regular usage of antibiotics kills the pathogenic and non pathogenic bacteria in the body; this will pave the way for the fungus to easily infect the organs of the body.Some dangerous skin infection damage skin tissues and spreads in the blood streams which in turn affects the internal organs easily. Treating the infection in the initial stage is very safe to avoid serious problems.

The systematic fungal infections start in the lungs organ. Then gradually develop the infection in that organ and high possibility to spread to other organs. The symptoms of the infection in internal organs vary according to the organs. The general symptoms are night sweat, weight loss, cough, prolonged fever, too much of tiredness and respiratory problems.

Skin irritation, itching, reddishness, discolored, scaly and dry skins are some symptoms when tissues of eth skin got affected by fungal infection. Finger nails and toenails are highly infected by fungus than other of the body. Very successful home remedies for toenail fungus infection is followed by many peoples to treat external infection. And it’s a very older procedure for the cure.

Home remedies for toenail fungus infection alone and self treatment are not advisable when internally infected by fungus. The systematic infection caused by Coccidioides immitis would not produce any symptoms it is known as valley fever, which affects the spinal cord, and membranes of the brain. But some rare symptoms are rash and muscular pain

Patients suffering from heart, lungs, liver and kidney diseases especially diabetic patients highly prefer home remedies for toenail fungus infection because synthetic drugs and medicines for fungal infection would not suit for their health condition. Diabetic patients have high possibility for toenail fungal infection than others, extreme preventive measures are essential for those persons.

The best home remedies for toenail fungus is applying the mixture of olive oil and tea tree oil on the infected toenails in regular twice in a day is beneficial. The antiseptic properties of these oils produce an effective cure. Soaking nails in the antiseptic mouth wash is also a preventive measure for the toenail infection, and it also gives healthier toenails.

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ALDE Public Hearing on Rare Diseases




Video summary of the ALDE public meeting on the evaluation of the implementation of the 1998 UN Plan “Towards a drug-free world by 2008″ Event date: 06/03/08 09:00 to 12:30 Location: Room ASP 3G3, European Parliament, Brussels The Public meeting is aimed at bringing together interested Members of the European Parliament of the ALDE group and of the European Parliament in general to discuss and evaluate with experts, members of the parliament, national parties representatives and non-governmental organizations how the UN strategy against drugs launched in 2008 has been implemented in the world, in the European Union and in its Member States. It also aims to plan activities and campaigns for ALDE and for its members in 2008 and 2009 in the view of the United Nations evaluation meetings, the first of which will take place on the 10th of March 2008, when the United Nations Commission on Narcotic Drugs will meet in Vienna to review the results of this strategy. The public meeting will follow up with a planning a series of activities on this issue. ALDE WEB Link: www.alde.eu [ALDE Events] [Language EN original] 080306-ALDEEVENTS-Towards_a_drug-free_world_by_2008

***PLEASE WATCH*** RIP Kaia Smith ( A video about dare diseases) ***PLEASE WATCH***




This is the story about Kaia Smith. Please comment and rate and most of all please send to everyone you know to help people realize even the rare diseases still take peoples lives and in this situation it took a 4 month old childs life.

Oncocytoma – A Kidney Tumor



Oncocytomas are a kind of benign kidney tumor that at times could develop relatively large. As with renal adenomas, it at times can be hard to tell them apart from kidney cancers. Since oncocytomas do not usually extend to other organs, removing the kidney can frequently generate a cure.

Oncocytoma initially explained by Zippel in 1942. This tumor signifies a different pathologic entity. Klein and Valensi in 1976 published their case sequence of patients with oncocytoma. The authors stressed the benign course of the disease and its distinct pathologic characteristics.

The Office of Rare Diseases (ORD) of the National Institutes of Health (NIH) recorded kidney oncocytoma as “uncommon disease”. This denotes that in the US population, kidney oncocytoma or a subtype of renal oncocytoma has an effect on less than 200,000 people.

In some sequences, kidney oncocytoma represents up to 18% of all solid neoplasms measuring 4 cm or less. Because radiologic difference between a renal cell carcinoma and oncocitoma is nearly impracticable, the histologic examination represents the foundation stone of diagnosis.

Oncocytoma of the kidney typically comes out as well-encapsulated tumors. Revoltingly, in general the tumor is small but can get to a large size and has a gray-white to tan cut surface. Microscopically, the tumor is made of large eosinophilic cytoplasm which has a lot of mictochondria. These tumors ought to be distinguished from renal cell carcinoma which has granular cells.

Some of the symptoms of kidney oncocytoma incude flank pain, blood in urine, abdominal mass, and asymptomatic. Patients with acquired cystic kidney disease (ACKD) are at an augmented risk of renal neoplasms. Repeated tumors are adenomas and renal cell carcinomas. However, kidney oncocytomas can happen in patients with ACKD.

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