My son has a rare genetic disease. (Agenisis of the Corpus Callosum)

rare disease
Tracy W

Now there are so many things that can go wrong… It ranges from him being severely mentally challenged… to him living a completely normal life. I was wondering if anyone out there has a child with this disease and knows the chances of him being normal. He is fine as of now… he is only 6 weeks old… he knows how to crawl, follows my voice, holds on to things for long periods of time. I have to wait another 2 weeks to get into the neurologist… and I am going crazy… Or can anyone refer me somewhere to get the answer. It will be greatly appreciated. I am just trying so hard to stay positive, but when I look it up, the majority of the things are negative…and it is driving me crazy!!!
I am sorry about the typo… it is Agenesis of the Corpus Callosum)

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Why do women opt not to breastfeed their children when they understand the countless health benefits?

rare disease
ArizonaGrl

As someone who is studying to be a nurse and have to see sick babies everday in my clinicals… I just don’t understand why someone who COULD breastfeed wouldn’t offer their child that protection… knowing that it could protect the baby from SIDS, childhood cancer, adult onset diabetes, cardiovascular disease, RSV, severe allergies, asthma, etc…..

When I go over the pamphlets (because it’s mandatory to in my job!) and mention to some mothers in hospital how breastfeeding could help their baby get well sooner… some still REFUSE and some even get defensive and angry. Some say it’s “gross”. And actually refuse to even pump for their baby. I don’t get it! No other species refuses it’s child it’s milk.

I understand that in rare cases some women cannot breastfeed. I am NOT referring to those who COULND’T, I am referring to those, who despite knowing and understanding how beneficial and health-enhacing breastfeeding is… still refuse to allow their child to have their milk.
I am a mother myself and have breastfed for over a year. So I HAVE been there, done that.

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