Children’s interstitial lung disease (chILD) is a term used to describe a group of rare diseases in infants and children. If chILD is suggested, efforts should be made to determine what type of chILD the child might have as different types of chILD have different long term issues that can be serious. This will require many tests. One thing is clear; chILD in infants and young children is different than in adults. A pediatric pulmonary doctor with expertise in chILD should be consulted.
An infant or child may have chILD if he or she has at least 3 of the following categories of problems without a known cause. Infants can have chILD from birth that rapidly progresses but older infants and children have these problems persistently for months.

1. Symptoms of abnormal breathing (cough, fast breathing, retractions, exercise intolerance)
2. Evidence for problems with oxygen (abnormal oxygen at rest, night or with exercise)
3. Abnormal chest Xrays
4. Presence of abnormal sounds

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my daughter started having fainting spells about a month ago.never would i have dreamed that i would take her to the hospital and eventually find out that the doctors think that she would have this rare,horrible,life-threatening disease,they said that her only chance of survival is a bi-lateral lung transplant.If there are any doctors out there or any families willing to donate, my daughter weighs about 55 lbs and her blood type is B positive, we are located at CHILDRENS HOSPITAL LOS ANGELES, her name is DELAYSIA WILLIAMS.I really need help. GOD BLESS.

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The disease has several names, extrapelvic, pulmonary and thoracic endometriosis.

Help with Angina

My mother has been suffering for 8 years now, and now her life is at stake, due to everything that comes along with it ie:C.H.F. Epstein Barr, and I.L.D. I do know that G.B. is a rare disease, but more info would be helpful to my family and myself

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I guess the symptoms are shortness of breath, collapsed lung/s and chest pains. My husband has had a collapsed lung and the other symptoms and he saw a commercial about the L.A.M.B disease and I can’t seem to find info about it.

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They have said she needs blood transfusions etc, this could last weeks/months or even years. Does anyone have any information or similar experiences? Please provide me with these details. It’s very sad and heartbreaking as she lost her husband last year with a rare blood disease. Her paralyzed state began with her arms and she is unable to feed herself or go to the toilet it then went in to her legs leaving her unstable and she could lose full use. They have told her it is a rare allergic reaction from her flu injection. Is this right? Please can someone answer or help.

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I was just diagnosed with this today, and this is a very rare disease. Has anyone else had this disease or know anyone that has had this and what I can expect now that I know?

Help with Anxiety

arterial blood will be most valuable to quantify in determining if the acidosis is of respiratory origin?

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Why hypochloremic acidosis and bicarbonate administration? Why do we do this?

Anxiety Info

Question stimulated by the book “Living With Lung and Colon Endometriosis: Catamenial Pneumothorax by Glynis D. Wallace.

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