Does anyone have information on rare renal disease called Idiopathic Collapsing Glomeralpathy(ICG)?
Angela
It is a disease that is not very common and as far as I know there is no cure but to go through dialisis and then renal transplant and hope that it does not reject that kidney as well… my daughter is 9 and diserves to have a chance at life so there fore I am looking for answers from anyone I can find it at… I don’t want to wait for her to go through this if I can stop it I want to stop it.
Ok maybe I did not make myself clear she is already seeing a speciallist… I am looking into finding someone who might be able to point me towards a clinic or college that has information about this disease because noone here knows anything including the wonderful doctor treating her
you need to be discussing this with a top of the line nephrologist.
please don’t take the advice of anyone here.
you can search the web, as i just did. it may help you put together a list of questions for your child’s doctor.
dear im sorry for that .. i’ve been an hour searching for any info. about this disease but no results . i think u should check the spelling of it .
and i’ll keep trying to find out any information