Has anyone ever heard of Sclerosing Mesenteritis and how best to treat it?
judithladnerii
My sister was diagnosed with this disease and nothing the doctors have done seems to help. She’s lost over 100 pounds and is apparently dying of this very rare disease which supposedly looks and behaves like cancer but isn’t? Can anyone explain that?
Hiya, try this link. Hope it helps!
Treatment of sclerosing mesenteritis is usually empirical and may consist of therapy with steroids, colchicine, immunosuppressive agents, or orally administered progesterone. Surgical resection is sometimes attempted, but complete removal is often difficult due to vessel compromise and may be of no clear benefit to the patient. In cases of colonic involvement by sclerosing mesenteritis, a colostomy may be necessary because complete surgical resection is often not technically possible.
With surgical and medical treatment, some patients will follow a relatively benign course, whereas others will experience progression of the disease, which eventually leads to death. In some cases, the process resolves completely. CT with three-dimensional volume rendering is the optimal study for accurate, noninvasive follow-up of the volume, extent, and vascular involvement of the mass and of any potential complications.