E-mail Contact:
Please note that we are unable to open unexpected e-mail attachments. If you must send us an attachment, please notify us first.
If you have questions related to providing care or accessing services for someone with a rare disease, write to:.
If you have a question related to genetic testing or the inheritance patterns of diseases, write to:.
It will help us provide a faster response if you send your question to just one of the three e-mail addresses listed above.
How Did You Hear About NORD?
We appreciate your visit to our Web site. Please send us an e-mail to let us know your country of origin and how you heard about NORD. We’ll also welcome any comments or suggestions you may have regarding our Web site.
type what you said in your search, it should come up.
this is their web site
Contact NORD
Mailing Address:
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone Number:
(203) 744-0100
Tollfree: (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax Number:
(203)798-2291
E-mail Contact:
Please note that we are unable to open unexpected e-mail attachments. If you must send us an attachment, please notify us first.
If you have questions related to providing care or accessing services for someone with a rare disease, write to:.
If you have a question related to genetic testing or the inheritance patterns of diseases, write to:.
It will help us provide a faster response if you send your question to just one of the three e-mail addresses listed above.
How Did You Hear About NORD?
We appreciate your visit to our Web site. Please send us an e-mail to let us know your country of origin and how you heard about NORD. We’ll also welcome any comments or suggestions you may have regarding our Web site.