How to handle when a doctor doesnt tell you everything?

rare disease
bodmodangel

I had surgery 2 months ago. I met my surgeon once before the surgery and didnt see him again until last week. I had spoken with his PA a few times. When I met with the surgeon the other day I was made aware that the PA had pretty much lied to me about having a very rare disease. I’m not too happy. He also told me I had to damage to my ligaments which wasnt true. And then I ordered a copy of my medical records and I found out that they STILL aren’t telling me everything. I’m not quite sure how to handle this situation. I need this doctor as he is one of only 2 doctors in my state that deal with my disease.

The Hidden Secret

3 Comments so far

  1. Debbie G on March 31st, 2009

    Your PA is an idiot as most PA’s I’ve ever dealt with are. Deal with the doctor directly and let the doc know the PA isn’t being truthful. Your doctor needs to know how his patients are being treated. If your doctor is condoning this behavior then, regardless, you need to switch doctors.

  2. sam on April 3rd, 2009

    u know wat u must not trust doctor much first of all trust on your self and god cz he is the only one who can help.

  3. Patrick on April 6th, 2009

    I naively expected my doctor to receive report s form specialists and then write a summary of my problems based on these; however, they seem intent only on stabilising my blood sugar to prevent further damage but seem in no way interested in dealing with the problems I am experiencing as a result of current symptoms and particularly not any psychological stress i have incurred as a result of the disease.When I suggested to the doctor that I felt that the doctors were going to hang me out to dry he blew up – and of course expecting them to commit an opinion to paper was exceedingly foolish.My doctor hesitated about sending to a neurologist to quantify my nerve damage and finally asked what I wanted to do; the question running through my head was ‘don’t you know?’
    At the eye clinic the doctors bundle you in and out of the laser clinic; they do answer your questions in a very hurried cursory kind of way and it is exactly the same pattern as with the G.P. = you have to frame the questions and they will answer them by mumbling agreement and rushing on or occasionally tossing a nugget your way.By this method i have divined that my inability to see for the first two hours of the day is due to water pooling in the laser holes during sleep,accommodation problems due to high blood sugar, and age related presbyacusis exacerbated by lack of correction and poor light levels; all fine and dandy but this information should have presented to me on a plate in a written report without my having to drag it out of them piecemeal over the course of asking many people over several months.This is waht i am paying them for as i am not a doctor.At this rate i might as well go to college and find out myself as it would be quicker.
    One G.P. didn’t know, another got defensive and a third simply did not listen and another went crazy on me when I knocked on her door as I was late and a bit confused because my sugar had gone low.
    They and everyone else i have spoken about this including other diabetics I have spoken to about this and who should know better have resolutley refused to accept for example that low levels of sugar can alter your mood and consequently I am left in agony stumbling blindly around the streets and falling around,getting chronically angry before mealtimes and just generally feeling unwell.If I were to become employed now I would not last a week as I get very upset when people touch me especially from behind as i can’t see them coming;I am very uncomfortable all the time as nerve damage means I can not regulate my temperature and I am exhausted at the end of the day possibly due to some other nerve damage failure.
    I am in the same position as you as I am too mentally exhausted to go up against them and don’t want to get on the wrong side of the doctors it makes me really upset that my mother will not accept that i am ill and more accurately i hate her.Every day is a long drawn out stressful ordeal.
    I suppose the doctors’ argument is that they have the training to see the full picture and it is either arrogance or slapdash attitude- a newspaper article recently suggested that the complaints system is a smokescreen leading to higher and higher levels of complaint at which point a letter arrives saying that they can’t help you any further; I leave i t to others to suggest the other professional bodies to which you can complain at this point.
    As a general point the new legislation on disclosure in Britain stated that you are entitled to the information as long as the doctor feels it would not damage you. I am not suggesting that this is the case here but doctors have a duty to see how much information would be useful for the patient to know and how much they can digest,what information would complicate the problem and so on.Of course it is odd that you did speak to the surgeon in depth before the operation,but as a general point the system sucks;you feel that they are making you run for information which should be fully and freely available and that they are perfectly willing and able to turn nasty if you complain; a mixture of sloppiness and arrogance to reiterate my earlier point.

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