In which Matt talks about the NORD and makes a couple requests of his video-making subscribers. Charity: www.rarediseases.org Promoted by www.youtube.com THE INFO I PROMISED: Videos should be no longer than about a minute in length, in .avi, .wmv, .mpeg4, or .mov format. Upload videos to sendspace.com or some other file sharing site, then send the link to bandgeek8408 [at] gmail [dot] com. (Also, be sure to let me know who’s sending it, so I can give credit where credit is due.) Deadline is April 19. (Which also happens to be my cousin’s birthday. That’s so I can remember.) And before anyone asks, no, I will NOT be editing this video on iMovie if I can possibly help it.

My cousin is 4 years olld and just got diagnosed with an extreemly rare disease called fibrodysplasia ossificans progressiva otherwise known as FOP. I was wondering if anyone had ever heard of this disease or if any one knew anyone with this disease.

FOP is a disease that turns damaged tissue into bone so if a normal person got a bump it would go away but if he gets hurt it turns into bone which can limit his use of his mucles.he already has limited use of his arms and will eventually have to have a wheel chair and possibly not be able to feed himself or move his jaw.

so if anybody has any usefull information or has any ideas on how to help him. please anwer this question

**best answer gets free 10 pts**

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He is older now, but i want to learn more about it, do you know anything about Crigglr Najar? I beleieve thats how it’s spelt. If you have any info or a good website, it would be greatly appreciated.

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Hi my cousin has just been diagnosed with a rare neurological degenerative disorder, but no one in my family seems to be able to tell me the name.

It’s commonly diagnosed in early childhood (around 8 years old) and she’s been given a life expectancy of around 16 years old.

Symptoms include loss of mobility starting in the limbs.

If anyone has heard of a disorder like this I would appreciate a name – some information, anything.

Thanks

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