CheckOrphan NewsFlash for Friday, November 20, 2009: breaking news about rare diseases, orphan diseases, orphan drugs, and neglected diseases. Today’s broadcast highlights topics about: Yale, Lyme disease, Cell Host & Microbe, tick bite, Imperial College London, University of Reading, University of North Carolina, avian flu, bird flu, H5N1, PLoS ONE, pandemic, CEL-SCI Corporation, H1N1, Johns Hopkins, LEAPS-H1N1, ImmuPharma, Lupuzor, Systemic Lupus Erythematosus, SLE, Actelion, Food and Drug Administration, Zavesca, Niemann-Pick type C, type 1 Gaucher disease, Genentech, Biogen Idec, Rituxan, lymphocytic leukemia, CLL, Global Network for Neglected Tropical Diseases, Sabin Vaccine Institute, neglected tropical diseases www.checkorphan.org http www.globalnetwork.org

I’ve seen lyme disease in animals quite frequently – I work for a vet. I know that it can remain dormant for years in an animal, but some of the symptoms are different – like animals don’t get the rash that most people get.
Now I’m beginning to wonder if I have the disease because I’m tired all the time and I get random joint pains. Just yesterday though, I got swollen lymph nodes in my neck… I never had that classic bullseye rash, and I haven’t found a tick on me in months.
The only thing that comes to mind for me is Lyme disease, but can that remain dormant in humans like it can for animals? What else comes to your mind besides Lyme?

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My dog has tested positive for lyme disease…what should I be concerned with? What should I expect to happen? I feel like such a horrible dog owner! We had been treating her for ticks and fleas. The vet says that there is no way of knowing when she may have contracted it…she told me about being limp or not eating and in rare cases it causing kidney failure and death….but would her behavior change at all?

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I just found a tick on my toddler son and it had already attached itself to him. I’m really freaking out. How common are these diseases?

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Been to Northwestern and contacted Mayo. Kinda a last resort anybody have any info or know anyone with this?

For nine months I ‘ve had :

Chronic hives
Angioedema
Idiopathic Anaphylactic Shock

currently on Cyclosporine, which lowers my immune system but leaves me vunerable to all my kids colds, flu etc. would love suggestions on this part as well.

No known allergies before nine months ago, I was perfectly healthy thirty something yr old adult. This is considered Autoimmune. I’ve already logged all of my food intake for months, cleaning supplies, soaps, perfumes. There is just no rhyme or reason to when it will happen or not. Now i’m up to 2 shots of .3mg epipens to open my airways and get me breathing again. Any ideas?
Two weeks before this all started i had pancreatitis…

I will check if i was tested for lyme disease. They have tested me for everything else under the stars. I’ve also have mir and many ct scans.

Thanks for the input.
I had a biopsy and tested negative for vaculitis.

I was also tested for lyme disease.

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