An American soldier was captured by the Germans during the war?




A couple of weeks went by, and it was discovered he had a rare disease in his limbs. The Germans told him “we are sorry, but we have to amputate your right arm”
The soldier replied “if you must, but will you send it back to the states so it will be buried in my homeland?”
They said “Yes”.
A couple of weeks later it spread to his left arm, and it needed to be amputated as well. He made the same request to send the limb home, and the Germans obliged.
A couple more weeks later, it was discovered it spread to his left leg. The Germans informed him they would need to now amputate his leg. He again requested they send the limb to the states. This time the Germans said “NO!”
He asked “why not?!”
They replied “We think you are trying to escape!!”
To “ilovethecolony’s”- Do you think this is funny??????????

Rare Disease Day 2010




Rare Disease Day 2010 Staggering millions of people worldwide are impacted by rare diseases. Join the global flight! This is the Hungarian “reincarnation” of the film of AddiCassiFund for public summons. Milliónyi embert érintenek az un. “ritka betegségek”, amik nem is olyan ritkák, hiszen oly sokféle van bel?lük! Támogassa részvételével is a RIROSZ rendezvényét!

Prof. Antonios Trakatelis addresses EURORDIS Annual Meeting 2009




Prof. Antonios Trakatelis, MEP, Greece addressing the European Rare Disease Organisation’s Annual Membership meeting in Athens in May 2009. The meeting was themed : No Rare Disease policy without patients

Why did I feel romantic emotions? PLEASE explain?




First of all I’m 25, reached puberty two years ago(will be two years in June) because of a rare disease. I’m on birth control pills for that.

Anyway I was watching Eureka one day and the sherriff reclined in his massage chair, as the chair was making noise he was moaning. That turned me on! I felt romantic emotions! Why would I feel romantic emotions over something non romantic? Please explain! And if you say the chair is symbolic, what is it a symbol of?
Yes I posted this question before but didn’t get many responses that explained.

For those of you that are wondering, I have extreme self control and don’t act on my horniness or romantic emotions.

RareDiseasesNOW




RareDiseasesNOW.org provides a community for you to build day-by-day, member-by-member, interaction-by-interaction that strengthens the voice of patients who have a rare disease, and those caregivers, organizations, and healthcare professionals who are committed to supporting each other.

VOTE to help fund hope for sick kids!




The Global Genes Fund is a platform dedicated to promoting rare disease research initiatives that are focused on developing therapies and treatments within these childrens lifetimes. This platform will be a clearinghouse for innovative, collaborative research that will impact the millions of children affected by rare diseases and disorders. Vote Today! www.refresheverything.com/fund-hope-for-sick-kids

Cardinal Defends Dignity Of Patients Sick From Rare Diseases




There are currently more than 6000 diseases classified as “rare,” and little is know about them. In Italy, for example, there is a frequency of one case in 20000 to 200000 people. On Rare Disease Day, the Giuseppe Dossetti association held a congress in Rome called “Rare Diseases and Disabilities.” Physicians, scientists, politicians, pharmacists and members of various associations attended the congress with the aim of raising awareness about these type of diseases. Scientists began to study them in the 1980s. Marina Del Bue Assobiotec 80 percent of rare diseases have a genetic basis, therefore, we believe that the contribution of biotechnology is extremely important. In fact, today thanks to some biotechnological techniques we been able to gain benefits on some of the main diseases. These diseases present many diagnostic and research difficulties. Thats why there is a lack of effective treatments. One of these is the Friedreich’s Ataxia. An extremely rare neurodegenerative disease that poses serious heart problems and still no medicine has been found to cure it. Cardinal Javier Lozano Barragán, president of the Pontifical Council for the Pastoral Care of Health Care Workers, presented the “Lectio Magistralis” on the right to health. Cardinal Javier Lozano Barragán President of the Pontifical Council for the Pastoral Care of Health Care Workers “The goal should always be to preserve the non-negotiable dignity of human life, of the human person, because people are who they

What could be wrong with my dad’s leg?




My dad is always worrying about his health, and thinks that every little cold could be some rare disease. He’s been jogging 4-5 miles 4 times a week for about 4 years. On his right calf (in the front) there’s a bump. The bump is about the size of a kiwi but it doesn’t pop out, it’s flat but kiwi size. It’s a little red (that also might be from him rubbing it, but he won’t admit that.) and he says it hurts. When he bends his leg and you touch the bump while he bends his leg, it feels like its popping or stretching. He doesn’t want to go to the doctor unless he knows it’s something serious. Any opinions are welcomed. Thanks! =]
Now, he said it felt like muscle that isn’t supposed to be there, the other leg doesn’t have it. He thinks it’s a tumor now. Aren’t tumors supposed to be firm, and hard? The bump on his leg isn’t hard, it’s kind of squishy.

Rare Disease Day 2009




Celebrate Rare Disease Day on February 28th, 2009 and show that 7000 rare diseases in the US alone is NOT rare!

Diseases Spread by Flies



Not only are flies a nuisance when they are around the home but they do also bring diseases with them both to human beings and domestic animals.

Over the years, flies have been said to be spreading diseases like malaria, typhoid fever, anthrax, leprosy, cholera, conjunctivitis, tuberculosis, dysentery and diarrhea in human beings. They cause parasitic tape worms on poultry or parasitic tape worms on horses.

Flies increase rapidly during warmer seasons this means that diseases will now have to spread faster if proper hygiene is not observed in our homes. Here is a reason for you to prepare for the fly season in order to reduce the spread of diseases. Flies are known to carry bacteria in their feet and mouths that cause mastitis. These flies do not transmit diseases by biting but rather the moist materials of food particles that remain in their mouthparts when they feed contain bacteria that will be transferred to a different place where the fly will land to feed or even to rest. Flies like feeding on rotten plants or any decaying matter, from there they will leak milk that has mastitis bacteria.

When this fly that has leaked the milk containing mastitis bacteria bites the thin skin of a cow’s teat, they cause a lot of damage and irritation that leads to formation of wounds. The teats are exposed to bacteria’s like staphylococcus that grow in the wounds. As it is with any open wound in the teat, it will lead to mastitis. In calves, flies feed on the moraxella bacteria that cause pinkeyes that are found in calves discharge and tears. Pinkeye spread rapidly from calve to calve when the flies population is high.

Kala-azar is a rare disease caused by sand fly. It spreads through sand fly and is a parasite in nature. It affects the skin membrane and in most cases can cause membrane ulcers. It is spread by fly biting; for example, when a fly bites an infected animal it transmits the disease to human beings.

Dysentery can be transmitted in human through the food. When we leave our food uncovered the flies come and leak them with the moist materials that remain in their mouths after feeding on the decayed materials they carry bacteria with them that causes dysentery. Flies like moist places and are attracted to smell of fermenting materials. They can transmit parasitic worms that cause skin infection in human beings and leaves droppings on food and utensils that makes the food contaminate.

Bacteria that causes cholera is found in human feces and is carried by flies that will come and feed on our food and water that we drink.

When we consume food that is contaminated or water we contact typhoid, it is a food borne disease and is caused by a bacteria called salmonella typhy, flies transmits the bacteria causing this disease. Malaria which is the most dangerous disease in the world is spread by mosquitoes; it transmits the disease from one person to the other through biting.

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